ALS
ALS steals movement.
But will never steal our fight.
Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease, is a progressive neurodegenerative disorder that attacks the nerve cells responsible for controlling voluntary muscles. Over time, it paralyzes the body—legs, arms, voice, breath—all fade, but the mind remains sharp.
That’s the brutal truth.
ALS doesn’t wait.
It doesn’t slow down.
And it doesn’t have a cure.
Why It Matters -- Now
Every 90 minutes, someone is diagnosed with ALS — and someone dies from it.
Source: ALS Association
90% of ALS cases occur without any known family history.
Source: ALS Association
Most diagnoses occur between ages 40 and 70, with an average age of 55.
Source: ALS Association
There are fewer than 260 active interventional clinical trials worldwide for ALS. In contrast, there are over 24,000 active cancer trials.
That’s a 200x difference in research opportunity.
ALS isn’t just underfunded — it’s underserved.
Symptoms You Can't Ignore
ALS often begins subtly. Early signs may include:
Muscle weakness or stiffness
Slurred speech
Difficulty swallowing or breathing
Muscle twitching (fasciculations)
Unexpected fatigue or loss of coordination
It starts quietly — and moves fast. Once it begins, there's no turning back… yet.
So What Are We Doing?
- We’re refusing to stay quiet.
- We’re turning up the volume.
- We’re demanding urgency, innovation, and investment — now.
Hope Isn't Optional -- It's Essential
ALS may be a beast, but hope is louder.
We believe in a future where ALS no longer ends lives too soon.
Where voices aren’t silenced.
Where cures are within reach.
- This May, we Amplify the Fight.
- This year, we Fuel the Cure.
- This moment, we stand with every fighter, caregiver, and family.
Let's Make ALS Impossible to Ignore
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